CADDAC 2016 Accomplishments
- Continuing up-dates to the existing web site occur weekly/bi-monthly
- Information on ADHD in the justice system was added to both web sites
- BC advocacy initiatives were highlighted on the web site
- A new section of the site was added “Getting Started” a group of documents for parents of children and for adults who have been newly diagnosed. This is will also be a resource to be used by medical professionals for their patients.
- A total reconfiguration of the website was completed for the new web site. Work on the new site, on a new platform was initiated in November of 2016. This new site will integrate CADDAC’s web site, the ADHD Awareness Month site and the blog. All pages (over 300) have been up-dated. New material including documents in French will be added. The site is expected to be completed in June 2017.
Information Brochures and Getting Started Postcard
- CADDAC shipped even more brochures out this year to doctor’s offices and clinics across Canada
- Distribution of brochures at patient educational events and community events
- Brochures were given out in significant quantities at information booths during the Primary care Conference, the CADDAC and CADDRA conferences, the adult workshop, the Durham Board ADHD Awareness event, and the TDSB Parent Special Education event, the Kingston and Penetanguishene/Midland education sessions, and both Mississauga events
- Brochures were shipped out after these events for physicians and clinics who wished larger quantities
ADHD in the Post-Secondary Environment
- Follow-up with colleges and universities continued throughout the year, through phone calls, sharing of the paper and information included in workshops for parents and medical professionals.
- Continued distribution of child and adolescent ADHD USBs occurred
- Continued distribution of adult ADHD USBs occurred
Online Presentations and Webinars
- 2016 Conference presentation recordings were made available to stakeholders
- In the fall of 2016 CADDAC launched our webinar series with the presentation of six webinars over 3 months
- Webinars are free to members and at a reasonable cost of $10 for non-members
- Webinars attendance seems to also be increasing membership registration
ADHD in Transition, child to adolescence and adolescence into adulthood
- During our 2016 conference a presentation was given on “Transitioning from Adolescence into Adulthood.
- On April the 9th 2017 a full day workshop will occur for adolescents, adults and their families. Afternoon workshops will include topics on “Transitioning From Childhood ADHD into Adolescent ADHD and Beyond: what parents need to know”, “Transition to Post-Secondary Education for Students and their Parents”, “Communication Strategies for Adolescents & Adults” and “ADHD in the Workplace” All of these presentations will include information on challenges found in ADHD transition periods.
- Several new sections for adolescents are being developed on the CADDAC website. One covering a Q&A section for adolescents, reading and resource lists, anothercovering information specifically for those entering post-secondary educations and a new “Getting Started” section for adolescent/post-secondary highlighting documents those recently diagnosed should be accessing.
- Information from the presentation on “Transitioning From Childhood ADHD into Adolescent ADHD and Beyond: what parents need to know” will be added to the new Child and Adolescent – Parent section of the web site.
Two Day Parent PREP Program
May 28th and 29th
A larger audience attended this year’s session. Feedback was overwhelmingly positive with comments such as, “very valuable”, “very educational and inspiring”, “life altering and what’s even more important, without your help this info would most likely have taken me years to discover”.
Outline Day One
Topics to be covered:
- What ADHD is and is not
- Symptoms of ADHD as defined in DSM 5, how these present and can be misinterpreted
- Primarily inattentive ADHD (ADD) and how it presents differently
- Why ADHD in girls is often underdiagnosed and misdiagnosed
- Commonly occurring coexisting disorders
- What is involved in a comprehensive assessment and diagnosis of ADHD
ADHD and Learning
- Past studies and what they tell us about academic outcomes
- Executive Functioning (EF)impairments and ADHD
- How EF impairments impact children with ADHD
- Other common cognitive impairments in children with ADHD
- Common classroom presentations of EF impairments
ADHD and Self- Regulation
- Common social and emotional impairments in children with ADHD
- How these impairments present
- Research on social skills training
- Parent Friendship Coaching
- Self-regulation and why it is impaired in children with ADHD
- How these impairments present
ADHD and Emotional Dysregulation
- Symptoms of emotional regulation impairment
- How this differs some mood disorders
- Why this is so common in children with ADHD
- How we regulate emotions
- The emotional regulation fuel tank
The Treatment of ADHD
The multimodal treatment of ADHD
- Alternate treatments
Outline Day Two
Topics to be covered:
ADHD and the family
- Parental impact and stages of acceptance
- Impact on siblings
- Impact on the child with ADHD
- Impact on the family as a whole
ADHD Parenting and Behavior Intervention
- Parents with ADHD
- Parenting Tips
- External reminders
- Organizational strategies
- How to correctly use consequences
- External rewards
- Token reward systems
- Behavioural Contracts
ODD and CPS
- What is ODD
- Collaborative Problem Solving Approach
School Observations, Classroom Strategies and Accommodations
- Questions to ask about your child’s functioning at school
- Classroom accommodations and strategies
- Communication between home and school
- Daily report cards
- Self-monitoring systems
- Homework issues
- Understanding your province’s Special Education System
- What is an IPRC?
- What is an IEP?
- Required documentation
- The students’ rights
Understanding and Working with Your Adult ADHD
This informative and interactive workshop was a mix of presentations, discussion and sharing sessions. The focus was on understanding ones individual ADHD and discovering how symptoms may lead to impairments in the home, workplace and in relationships. A good portion of the day was spent looking at useful strategies, tools and accommodations that may be helpful. The day will end with an open discussion on common roadblocks, frustrations, as well as successes and a break-out sessions for parents and significant others.
Featured Presenters and Facilitators were:
- David Teplin, Adult Clinical Psychologist
- John Tucker PhD ACG, ADHD Coach
- Heidi Bernhardt, RN, President and ED CADDAC
- Russ LeBlanc, Radio Personality, Entrepreneur and Adult with ADHD
Topics Covered were:
- Overview of Typical ADHD Impairments at home and in relationships
- Strategies – organization, prioritizing time management
- Overview of Typical ADHD Impairments in the Workplace
- Possible Strategies and Accommodations in the Workplace
- Common Roadblocks, Frustrations and Successes
- Alternate discussion for significant others and parents
CADDAC 8th Annual Two Day Conference
This year’s conference took place in Vancouver at the Chan Family Center which is affiliated with Children’s Hospital and UBC. Our guest speakers including a fabulous roster of Canadian ADHD experts including, Dr. Rosemary Tannock, Dr. Penny Corkum, Dr. Geraldine Farrelly, Dr. Diane McIntosh, Dr. Elizabeth Baerg Hall, Dr. Caddice Murray, Dr. Jake Locke, Dr. Amori Mikami, Ryan Santin and Heidi Bernhardt. Because the conference was located at the UBC venue we were able to record many of the sessions which should be available to conference attendees and for purchase from our web site. Feedback was once again overwhelmingly positive. Topics covered were, Understanding ADHD and its impact on learning and school functioning, ADHD in the Classroom and How to reach and teach children, Supporting Executive Functioning in Children and Youth for Parents, Emotional and Self-Regulation Difficulties and Oppositional Defiant Disorder (ODD) seen in children with ADHD, ADHD and Coexisting Disorders Through the Life Span, Social Skills Coaching, A Practical Guide to Executive Functioning for Adults with ADHD, Treatment and Options – Pills and Skills, Women and Girls with ADHD…Saints, Sinners, Scholars,
The Ups and Downs of Emotion Management for Adults with ADHD, Transitioning from Adolescence to Adulthood, Mindful Strategies for Reducing Stress at Home and Adult ADHD Strategies and Accommodation for the Workplace
Family Physician Clinic
Heidi Bernhardt and Dr. Karen Ghelani presented on ADHD to a large family physician clinic in the Markham area.
TDSB Parents for Parents Conference
On April the 16th Heidi Bernhardt presented a workshop on What Parents Need to Know When Advocating for Their Child with ADHD in the Ontario School System
Child Welfare Conference
On May the 26th to the 28th Heidi Bernhardt presented eight presentations on ADHD to the conference attendees.
Durham High school ADHD Presentation
On May the 12th Heidi Bernhardt presented to a high school in the Durham school board.
Penetanguishene Educational workshops for Physicians and Medical professionals
On September the 28th CADDAC organized a half day workshop on ADHD presented by Dr. Tim Bilkey.
On October the 16th Heidi Bernhardt presented on “What Medical Professional Need to Know about ADHD and Education Systems” and also took part on a panel presenting on advocacy for ADHD.
ADHD Fall 2016 Workshop Kingston ADHD Support Group
On October the 22nd Heidi Bernhardt presented a full day workshop covering: ADHD Parents and the Family, ADHD Parenting Interventions, ODD and CPS, ADHD Adult Overview and Impairments
Midland Community ADHD Workshop
On October the 30th CADDAC organized a full day of presentations geared to the community featuring Dr. Tim Bilkey, Heidi Bernhardt and John Tucker as presenters. Many local community agencies attended.
Montessori Educator’s Presentation
On November the 4th Heidi Bernhardt presented a half day workshop to a group of Montessori educators on the impact of ADHD on learning and teaching strategies.
Shift Your Thinking, A Learning Difference Summit
On November the 5th Heidi Bernhardt presented two workshops on ADHD and Self and Emotional Dysregulation
ADHD Awareness Month
Fall of 2016 was our busiest ADHD Awareness Month yet. The month began with the release of our new policy paper, The Benefits of Recognizing and Treating ADHD in Canadian Justice and Corrections Systems. The paper was sent to all justice and corrections provincial and federal ministries as well as provincial law societies and judicial associations. A media release resulted in four radio interviews, one of which was a half hour interview with CBC’s The Current. The six weeks surrounding ADHD Awareness Month were packed full of ADHD educational events that CADDAC organized and/or presented at, two sessions in the Midland area, one for medical professionals and one for the community, a full day workshop in Kingston, two presentations in the Mississauga area, six webinars, a booth and presentation at the CADDRA Conference in Ottawa.
Live Media Interviews:
- October 11 2016 – Interview down town CBC studio CBCs “The Current”
- October 11th – Interview with CJOB Winnipeg
- October 14, 2016 – Interview with CFAX Victoria
- October 26 2016 – Interview with Northumberland Radio Port Hope
Smaller print and online articles were not tracked.
2016 ADHD Awareness Campaign
ADHD in the Canadian Justice System
This year CADDAC drew attention to an issue of importance that has long been ignored by the Canadian justice system. Incident rates of ADHD in the correctional population are 5 times greater than what we see in the community and ten times greater for youth. Yet little has been done to introduce assessment and treatment protocols within justice and correctional systems across Canada. This is occurring even though research and on site experience has shown there are significant benefits to doing so.
CADDAC launched a new paper, “The Benefits of Recognizing and Treating ADHD in Canadian Justice and Corrections Systems” (FRENCH), and shared it with Ministries of Justice and Corrections, law/bar associations, and courts with the hope that increased awareness will result in a dialogue on the implementation of screening, assessment and treatment of this disorder throughout the system.
Messages shared in the mail out, online and with supporters:
Early detection and treatment of ADHD would benefit offenders and society, and reduce costs to the justice system by:
* Potentially altering a youth’s trajectory into offending by early intervention
* Reducing substance abuse, criminal behaviour by 32-41%, and recidivism
* Improving disruptive behaviour and aggression in inmates while incarcerated
with the added benefit of reducing additional time on their sentences.
* Improving treatment for coexisting mental health disorders, suicidality and
substance abuse, which commonly co-occur with ADHD and are much more
effectively treated if ADHD is treated first
* Allowing for better access to rehabilitation and education programs when incarcerated
In summary, the reduction in criminal behaviour, improved behaviour while incarcerated and improved overall rehabilitation of inmates will increase their and their family’s quality of life, reduce costs to the justice system, benefit the communities they return to and Canadian society in general.
During 2016 CADDAC continued advocating around our concerns with the therapeutic equivalence of Teva-Methylphenidate ER-C. We met with Health Canada on June the 28th and for an in-person presentation on October the 31st at which time we shared our past patient/caregiver survey results and feedback from our patients population. CADDAC continues to monitor the situation and correspond with Health Canada.
Advocacy with the British Columbia Government Ministries Continues
BC Pharmacare Advocacy Campaign
CADDAC continued organizing advocacy efforts along with a BC physician committee during 2016. A collective letter with 140 physician and medical professional signatures was sent to Minister Lake, a patient/caregiver petition presented in the BC legislature. This resulted in the announcement of a medication review of ADHD medications by Pharmacare. CADDAC completed a Patient Evidence Submission and sent word via mass e-mails, social media and the web site requesting patients and caregivers to do the same. Follow-up letters were sent to Barbara Walman, Assistant Deputy Minister, Medical Beneficiary and Pharmaceutical Services Ministry of Health which resulted in a meeting between Heidi Bernhardt, Dr. Don Duncan, Dr. Matt Blackwood, Barbara Walman and Walton Pang.
After the medication review was completed the committee and Heidi met with Eric Lun and Walton Pang to discuss the recommendations of the review and our thoughts. Advocacy efforts and negotiations continue.
In July of 2016 CADDAC reached out to the BC Ministry of Education to renew advocacy efforts which had stalled due to several changes in the person overseeing the portfolio. We did connect with Patricia Kovacs at the Ministry and a face to face meeting was set for October 10th. Although we were not able to meet with Patricia Heidi Bernhardt Dr. Rosemary Tannock, Dr. Don Duncan and Dr. Candice Murray, did meet with Jennifer Halbert, who informed us of the proposed changes to the Ministry’s Special Education Guidelines which would include ADHD into the Learning Disability category following the path of DSM 5 recognizing ADHD as a neurodevelopmental disorder.
CADDAC has been working with the BC physician committee on issues with the Safe Prescribing Guidelines being proposed by the BC College of Physicians.
On January the 27th Heidi Bernhardt, Dr. Rosemary Tannock and Cheryl Paige met with Louise Sirisko, Director Special Education Policy and Programs Branch, to discuss ADHD in Ontario school systems. The impact of ADHD on learning, the lack of teacher and administrator education, the inconsistencies of how these children’s learning needs are recognized and met across Ontario, and the continued exclusion of ADHD in the categories of exceptionality were all discussed. The Ministry continues to feel that students with ADHD can receive all the services required without being officially identified as exceptional students. This attitude and lack of movement on this issue is till of significant concern to CADDAC especially due to continuing phone calls from parents being denied services for their children. Although we were promised follow-up information on proposed changes nothing has been forth coming.
Ontario Public Drug Program (OPDP)
On March the 9th Heidi Bernhardt along with Dr. Judy van Stralen and Dr. Doron Almagor met with Suzanne McGurn, Assistant Deputy Minister & Executive Officer, Ontario Public Drug Program to discuss the inclusion of Intuniv to the Ontario formulary. Following this meeting additional information was sent and a follow-meeting promised. On November the 9th the same three people met with Angie Wong and Christine Seager. CADDAC will be launching a survey in 2017 to access feedback from caregivers that has been requested by the OPDP.
On November the 9th Heidi Bernhardt, Dr. van Stralen and Dr. Joan Flood all met with the Ontario Ministry of Health to discuss our ongoing concerns about the direct substitution of generic medications for Concerta and issues with the therapeutic equivalence.
- Significant consultation and training around social media occurred this year
- We have significantly grown our social media following this year which has resulted in some growth in members
- Scheduled Facebook posts are occurring twice weekly and tweets three times a week
- The blog will be featured on the home page of the new web site further integrating social media
- Targeted BC advertising was purchased on Facebook for our conference which resulted on membership purchases in BC
- Our Blog, Facebook page and Tweets are now all currently linked
- Social media platforms will be prominently featured and linked to on our new web site
- CADDAC Facebook and Awareness Month pages were edited for Awareness Month and revitalized
- Quebec medical expert and mother continued to monitor the French Facebook during Awareness Month
- All mediums used to especially promote Awareness Month, but also the conference, our surveys and advocacy initiatives
- The blog was frequently linked to documents and campaigns featured on the websites increasing web site traffic
Increased Networking among Canadian ADHD Organizations/ Support Groups and Increased National Presence
- Communication with ADHD groups across Canada continued this year
- This has resulted in our 2017 conference being held in Calgary and discussion about the 2018 conference occurring in Halifax or Moncton/Fredericton
- Continued meeting and discussion occurred with those interested in staring support and/or advocacy groups across Canada
- Additional groups were added to our resource list
- Groups interested in being involved in advocacy initiatives have been identified
- BC membership increased after our 2016 conference occurred in BC
CADDAC ran booths throughout the year at the:
- TSDB Special Education Parent Day, April 16th
- Child Welfare conference May 26th to 28th
- Primary care Conference, May 5 th-7th
- Penetanguishene Educational workshops for Physicians and Medical professionals on September the 28th
- CADDRA Conference in Ottawa, October 15th – 16th
- ADHD Fall 2016 Workshop Kingston ADHD Support Group on October the 22nd
- Midland Community ADHD Workshop, on October the 30th
- Dorothy Hill Ontario School Psychologist Symposium, November 28th
Working Groups and Coalitions
- Continued working with Awareness Month coalition members and other ADHD groups across Canada
- Continued communication with LDAO, Tourette Syndrome Foundation
- Continued interaction and postings of Clinics, support groups, research studies, coaches and other resources
- Continued to assist ADHD researchers with study recruitment through our web site, blog and newsletter